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October 18, 2011

WGBH/NCAM awarded "Access to Personal Health Records" grant.

Partners include Children's Hospital of Philadelphia and the Inglis Foundation.

WGBH’s Carl and Ruth Shapiro Family National Center for Accessible Media (NCAM) has been awarded a three-year, $600,000 grant from the U.S. Department of Education to develop and evaluate prototype personal health records and technology-based patient information systems to make them accessible to and usable by people with disabilities. NCAM’s partners on the project are the Center for Biomedical Informatics at Children’s Hospital of Philadelphia and the Inglis Foundation, which provides a wide range of independent living programs and services for people with disabilities.

The project, "Accessible Designs for Personal Health Records," funded by the Department's National Institute on Disability and Rehabilitation Research (NIDRR), will integrate accessibility requirements with usability factors in development and evaluation of prototypes to make personal health records and technology-based patient information accessible to people who have disabilities.

Prototype development will be informed by user requirements and complex use cases to meet both usability and accessibility criteria for equal and meaningful access. Validated approaches will be implemented within the commercial electronic health record system that Inglis will select and deploy throughout its programs and facilities.

Project staff will participate in health IT usability and accessibility standards initiatives to advance inclusion of accessibility requirements in national policies and certification processes.

About NCAM and WGBH

The Carl and Ruth Shapiro Family National Center for Accessible Media at WGBH is a research and development organization that works to make existing and emerging technologies accessible to all audiences. NCAM is part of the Media Access Group at WGBH, which has been providing captioning and video description services for people with disabilities since 1972.

WGBH Boston is America’s public broadcasting powerhouse—PBS largest producer of TV and Web content, including such award-winning programs as Antiques Roadshow, Frontline, Nova, Masterpiece, American Experience, Arthur, Curious George, and more than a dozen other prime-time, lifestyle, and children’s series and websites. WGBH is a pioneer in developing educational multimedia and new technologies that make media accessible to people with disabilities.

About the Center for Biomedical Informatics

The Center for Biomedical Informatics (CBMi) at The Children's Hospital of Philadelphia is the home for the development of innovative solutions to healthcare's immediate and long-term informatics needs. CBMi provides informatics-focused services, applications, and educational programs to Children's Hospital clinicians and researchers, and seeks to transform their craft with high-impact, low-cost solutions.

About the Inglis Foundation

Inglis Foundation is a community-based foundation that is committed to using technology and healthcare information to empower people with severe physical disabilities to live life to the fullest. Inglis maintains a skilled-nursing care facility and independent-living facilities as well as care management, adult day and employment services for people with disabilities living in their own homes.

For more information, contact:

Larry Goldberg, Director, NCAM

John Ascenzi, The Children’s Hospital of Philadelphia

Jorja Mathers
Director of Communications, Inglis Foundation

Gavin Kerr
President & CEO, Inglis Foundation